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Acknowledgements

Appreciate the contributions of the following and others to the website's content: Alexandra Carey, MD Daniel Kamin, MD Jennifer McClelland, FNP-BC Carolyn Rosa, CPNP-BC Mary Gallotto, BSN Melissa Takvorian-Bene, BSN Megan Gray, RD Ana Arena, RD Christina Tascione, BA Kathleen Gura, PharmD Margaret...

Question 12

You are consulted as the HPN expert by the inpatient cardiology team to facilitate discharge for a 3 year-old female with a history of heart transplant for hypoplastic left heart syndrome was admitted for new onset 3-week history of vomiting, diarrhea and weight loss. Diagnostic laboratory and...

Question 21

A 25 year-old patient with a Port-a-Cath implanted in the right chest complains of sudden onset severe neck pain and headaches with flushing central line and PN infusions. Labs and exam normal, including afebrile. Previous X-ray shows central line tip in at the cavo-atrial junction. Today, chest X...

Cost of Home Parenteral Nutrition Care

Population Home parenteral nutrition is a life-sustaining therapy provided to ~40,000 people in the United States. Delegge MH. Demographics of home parenteral nutrition. JPEN J Parenter Enteral Nutr. 2002 Sep-Oct;26(5 Suppl):S60-2. Review. PubMed PMID: 12216724. Total annual care In 2008...

Question 9

5 year-old male with long-term HPN dependence secondary to short bowel syndrome is seen for routine follow-up. Enteral tolerance is currently maximized. PN currently providing energy 45 kcal/kg/day, protein 1.3 gram/kg/day, IV soybean lipids 1 gram/kg/day, glucose infusion rate 10 mg/kg/minute...

Adding patient-reported outcomes to a multisite registry to quantify quality of life and experiences of disease and treatment for youth with juvenile idiopathic arthritis

Weitzman, E.R., LE Wisk, PK Salimian, KM Magane, Dedeoglu, AO Hersh, Kimura, Mandl, Ringold, and Natter. 2017. “Adding Patient-Reported Outcomes to a Multisite Registry to Quantify Quality of Life and Experiences of Disease and Treatment for Youth With Juvenile Idiopathic Arthritis”. Journal of Patient Reported Outcomes 2 (1).

Answer 8

The parent of an 8 year-old female with chronic parenteral nutrition dependence secondary to chronic intestinal pseudo-obstruction calls with leaking at right upper extremity peripherally inserted central catheter(PICC) within 2 hours of nightly infusion. What is the first thing to recommend to...

Question 13

Question 13. You are consulted as the HPN expert by the inpatient cardiology team to facilitate discharge for a 3 year-old female with a history of heart transplant for hypoplastic left heart syndrome was admitted for new onset 3-week history of vomiting, diarrhea and weight loss. Diagnostic...