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Videos

Acute Care Case Study: GI Sepsis -- A video lecture through OpenPediatrics Caring for a Central Line at Home -- An educational video series for families & caregivers HPN Fellow Training Video

Coping

Coping can occur in a variety of styles. Family members at different developmental stages. Previous context and history with illness. Grieving loss of anticipated childhood (without illness). Ambivalence between craving choices and craving guidance. Coping with diagnosis can often mirror grief cycle...

Congenital Tufting Enteropathy

Pathophysiology: Mutations EPCAM Disordered fixation protein expression along the basolateral membrane of intestinal epithelium (especially in crypts), which leads to the consequence of tufts along villi. Salomon J, Espinosa-Parrilla Y, Goulet O, Al-Qabandi W, Guigue P, Canioni D, Bruneau J...

Answer 1

Parent of a 1 year-old female on home parenteral nutrition secondary to short bowel syndrome (necrotizing enterocolitis) calls with a 2-day history of fever 101 degrees Fahrenheit (38.3 degrees Celsius). There are no other clinical complaints besides from teething. What is the next step? A...

Question 9

5 year-old male with long-term HPN dependence secondary to short bowel syndrome is seen for routine follow-up. Enteral tolerance is currently maximized. PN currently providing energy 45 kcal/kg/day, protein 1.3 gram/kg/day, IV soybean lipids 1 gram/kg/day, glucose infusion rate 10 mg/kg/minute...

Contact

Home Parenteral Nutrition ProgramBoston Children’s Hospital300 Longwood AvenueBoston, MA 02115 Telephone: 617-355-6439Fax: 617-730-4722Pager: 617-355-6000 #3226 HPN@childrens.harvard.edu Join our Facebook community.

Caregiver Teaching

Discharge Criteria for new HPN referral Patient selection: 2 weeks before discharge HPN Team consulted by primary service. Primary GI, inpatient nutrition attending and inpatient dietitian agrees to referral. Defined indication for HPN (e.g., SBS, severe malabsorption, fistula, GI obstruction, IBD...

Central Venous Access & Complications

Parenteral Amino Acids Solutions Fluids & Electrolyte Disorders (including renal complications) Micronutrient Disorders Iron Deficiency Anemia (including travenous iron) Pharmacy Reconciliation (including stability issues) Growth & Development Bone Health Body Composition Specific Digestive...