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Adding patient-reported outcomes to a multisite registry to quantify quality of life and experiences of disease and treatment for youth with juvenile idiopathic arthritis

Weitzman, Elissa R., Lauren E. Wisk, Parissa K. Salimian, Kara M. Magane, Fatma Dedeoglu, Aimee O. Hersh, Yukiko Kimura, Kenneth D. Mandl, Sarah Ringold, and Marc Natter. 2018. “Adding Patient-Reported Outcomes to a Multisite Registry to Quantify Quality of Life and Experiences of Disease and Treatment for Youth With Juvenile Idiopathic Arthritis”. Journal of Patient-Reported Outcomes 2 (1): 1-11.

Response to the Letter to the Editor From Mayen et al Regarding "Clinical Trial Recruitment and Retention of College Students With Type 1 Diabetes via Social Media: An Implementation Case Study"